- Title
- Living With Asthma and Vocal Cord Dysfunction/Inducible Laryngeal Obstruction: “I Just Can't Get Air In”
- Creator
- Majellano, Eleanor C.; Clark, Vanessa L.; Vertigan, Anne; Gibson, Peter G.; Bardin, Philip; Leong, Paul; McDonald, Vanessa M.
- Relation
- Journal of Allergy and Clinical Immunology: In Practice Vol. 12, Issue 5, p. 1326-1336
- Publisher Link
- http://dx.doi.org/10.1016/j.jaip.2024.01.028
- Publisher
- Elsevier
- Resource Type
- journal article
- Date
- 2024
- Description
- Background: Asthma and vocal cord dysfunction (VCD), also known as inducible laryngeal obstruction (ILO), may coexist, resulting in worse outcomes for patients. The experience of people with VCD/ILO and coexisting asthma is unknown. Objective: We sought to determine whether coexistent VCD/ILO and asthma have deleterious impacts on quality of life. Methods: We undertook a descriptive qualitative study using one-to-one semistructured interviews with 30 purposively recruited adult participants with a prior confirmed doctor asthma diagnosis and laryngoscopy-confirmed VCD/ILO. A thematic and content analysis was conducted to explore the data. Results: Participants were mostly female (63%), mean ± SD age 63 ± 12 years. Four themes were identified: trapped voice, altered life, knowledge about VCD/ILO, and looking for solutions. Participants reported their voice being trapped in their throat or the voice being suddenly cut off when talking or singing. Self-reported VCD/ILO symptoms including throat tightness and breathlessness were highlighted by participants. The second theme described how patients struggle to communicate or tended to shorten conversations. Insufficient knowledge and existing confusion regarding whether asthma was causing the breathlessness was described in the third theme. Looking for solutions depicted participants’ diagnostic journey and how they sought an explanation for the symptoms. Conclusions: People with asthma and coexisting VCD/ILO experience a substantial burden affecting the quality of life. These data describe the impact on patients with coexisting conditions and should be used to increase clinician awareness of the experience of VCD/ILO from patients’ perspectives to support a personalized approach to care.
- Subject
- asthma; vocal cord dysfunction; inducible laryngeal obstruction; paradoxical vocal fold movement; qualitative research; quality of life; SDG 3; Sustainable Development Goals
- Identifier
- http://hdl.handle.net/1959.13/1505653
- Identifier
- uon:55707
- Identifier
- ISSN:2213-2198
- Language
- eng
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