- Title
- What are the sources of distress in a range of cancer caregivers?: a qualitative study
- Creator
- Taylor, Jo; Fradgley, Elizabeth; Clinton-McHarg, Tara; Byrnes, Emma; Paul, Christine
- Relation
- Supportive Care in Cancer Vol. 29, Issue 5, p. 2443-2453
- Publisher Link
- http://dx.doi.org/10.1007/s00520-020-05742-0
- Publisher
- Springer
- Resource Type
- journal article
- Date
- 2021
- Description
- Purpose: Caring for a person diagnosed with cancer is associated with elevated distress that may impact on caregiver health and patient outcomes. However, caregivers' distress is relatively under-researched. This Australian study explored a range of caregivers' reported sources of distress. Methods: The grounded theory approach informed semi-structured interviews that were conducted with a purposive and broad range sample of distressed caregivers identified through the 'Structured Triage And Referral by Telephone' (START) trial. A grounded theory framework was used to generate themes with data analysed by two independent coders using the NVivo software. Results: Caregivers (n = 14) were aged from 25 to 80 years, including two bereaved caregivers. The relationships of the caregivers to the patients were as follows: partner (n = 8), parent (n = 1), child (n = 3), sibling (n = 1), and friend (n = 1). Six major themes emerged in relation to sources of distress: (1) a lack of sufficient and timely information; (2) uncertainty; (3) the role and duties of caregiving; (4) lack of family-centred services; (5) practical challenges; and (6) impact of distress. Conclusion: Caregivers face a number of specific challenges beyond those experienced by patients. It is essential to ensure that caregivers are actively well-informed and well-supported alongside the person who is diagnosed with cancer.
- Subject
- cancer; caregiver; distress; qualitative; SDG 3; Sustainable Development Goals
- Identifier
- http://hdl.handle.net/1959.13/1461375
- Identifier
- uon:46180
- Identifier
- ISSN:0941-4355
- Language
- eng
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