- Title
- Do haematological cancer patients get the information they need about their cancer and its treatment? Results of a cross-sectional survey
- Creator
- Watson, Rochelle; Bryant, Jamie; Sanson-Fisher, Robert; Turon, Heidi; Hyde, Lisa; Herrmann, Anne
- Relation
- Supportive Care in Cancer Vol. 27, Issue 4, p. 1509-1517
- Publisher Link
- http://dx.doi.org/10.1007/s00520-018-4525-2
- Publisher
- Springer
- Resource Type
- journal article
- Date
- 2019
- Description
- Purpose: To explore the experiences of haematological cancer outpatients in obtaining information about their cancer and its treatment. Methods: A cross-sectional survey of adult haematological cancer outpatients was conducted. Participants completed two pen-and-paper questionnaires: the first examined demographics and disease characteristics; the second, completed four weeks later, asked about the cancer information received. Participants indicated whether they received the information they needed about medical procedures and self-management, experiences regarding doctor-patient communication, and self-efficacy in seeking information and support. Where possible, items were derived from Australian psychosocial cancer care guidelines. Results: Two hundred and ninety-three (84%) patients consented to participate, with 170 (58%) completing both questionnaires. Most participants reported receiving information in accordance with guidelines. Areas identified as requiring improvement included difficulty recalling information (28%); information overload (26%); insufficient opportunity to ask questions (23%); and insufficient information about managing anxiety related to medical procedures (20%). Conclusion: While many haematological cancer patients report receiving adequate information, there is room for improvement. Implementation of evidence-based strategies, such as decision aids or audiotapes of the consultation, may help to improve information experiences. Practice implications: A patient-centred approach to information provision is essential for ensuring information addresses the needs and preferences of the patient.
- Subject
- cancer; information provision; patient experiences; communication
- Identifier
- http://hdl.handle.net/1959.13/1415049
- Identifier
- uon:36854
- Identifier
- ISSN:0941-4355
- Language
- eng
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