- Title
- Consumer health informatics for people who use AAC: views on e-health records at home
- Creator
- Hemsley, B. A.; Georgiou, A.; Adams, N.; Rollo, M.; McCarthy, S.; Hill, S.; van Vliet, P.; Balandin, S.
- Relation
- Biennial Conference of the International society for Augmentative and Alternative Communication. ISAAC 2016 Toronto Bringing us together: Full program (Toronto, Canada 08-11 August, 2016)
- Publisher
- International Society for Augmentative and Alternative Communication
- Resource Type
- conference paper
- Date
- 2016
- Description
- To date, there is little information in the literature to guide the provision of supports for people who use AAC to use personal electronic health (eHealth) records at home. Personal ehealth records are in digital form, accessible to the person, stored for ease of access and retrieval, for sharing with the person’s multiple health providers. In this paper we will (a) outline the rationale for using eHealth records by providing an overview of relevant research on consumer health informatics, health literacy, and legal and ethical issues related to the use of personal eHealth records, and (b) present the findings of three studies aiming to investigate the barriers to and facilitators for personal eHealth record use by people who use AAC and their service providers. Implications for people who use AAC will be explored and discussed in relation to sociotechnical factors affecting participation in health technologies.
- Subject
- eHealth records; consumer health informatics; communication disabilities; AAC
- Identifier
- http://hdl.handle.net/1959.13/1338706
- Identifier
- uon:28080
- Language
- eng
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