- Title
- Legal, ethical, and rights issues in the adoption and use of the ‘My Health Record’ by people with communication disability in Australia
- Creator
- Hemsley, Bronwyn; McCarthy, Shaun; Adams, Natalie; Georgiou, Andrew; Hill, Sophie; Balandin, Susan
- Relation
- NHMRC.1058094
- Relation
- Journal of Intellectual and Developmental Disability Vol. 43, Issue 1, p. 506-514
- Relation
- http://www.tandfonline.com/toc/cjid20/current
- Publisher
- Taylor & Francis
- Resource Type
- journal article
- Date
- 2017
- Description
- Background: The aim of this review is to explore the legal, ethical, and rights issues surrounding use of the Australian My Health Record (MyHR) by people with communication disability. Method: A narrative review of the legislation and research affecting the implementation of MyHR in populations with communication disability. Results: Use of MyHR by people with communication disability will require careful consideration in relation to: (a) capacity and consent, (b) roles of nominated or authorised representatives in the system, and (c) the way decisions are made in relation to use of MyHR, including supported decision-making for people with intellectual disability. Conclusion: Legal and ethical issues in use of MyHR by people with communication disability centre on legal rights and equal access. These issues must be addressed if people with communication disability are to have full access to their legal rights and access in exercising personal choice and control in the use of MyHR.
- Subject
- My Health Record; e-health records; ethics; legal issues; communication impairments; communication disability
- Identifier
- http://hdl.handle.net/1959.13/1318378
- Identifier
- uon:23611
- Language
- eng
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