- Title
- Unmet needs of survivors of a haematological malignancy: prevalence, predictors and psychometrics
- Creator
- Hall, Alix Edna
- Relation
- University of Newcastle Research Higher Degree Thesis
- Resource Type
- thesis
- Date
- 2014
- Description
- Research Doctorate - Doctor of Philosophy (PhD)
- Description
- This is a thesis by publication, comprising an introduction, one published literature review, five data-based papers (four published and one under review) and a concluding discussion. Guided by the theoretical underpinnings of the Supportive Care Framework, the overall objective of this thesis was to rigorously assess the unmet supportive care needs of adult haematological cancer survivors. In this body of work, unmet supportive care needs were assessed in adult haematological cancer survivors recruited from population-based cancer registries, using a cross-sectional questionnaire which included the Survivor Unmet Needs Survey (SUNS). Findings from this body of work suggest that supportive care addressing cancer-related tiredness and emotional and informational concerns may be needed by a minority of haematological cancer survivors. In particular, younger survivors, survivors experiencing increased financial burden as a result of their cancers, those who have had to relocate for cancer treatment, females, those with a vocational level education, survivors who have recently visited a health care professional for their cancer and/or are experiencing elevated levels of depression and stress may require additional and perhaps intensive supportive care. These findings could be used to inform future research into the supportive care needs of haematological cancer survivors, as well as improve the supportive care provided to haematological cancer survivors. Future research should strive for further improvement of the methodological rigour of research investigating the supportive care of haematological cancer survivors, by identifying potential strategies that may increase the response rates of survivors from population-based cancer registries and by refining the psychometric properties of the SUNS for use with haematological cancer survivors. Health care providers and researchers should attempt to effectively address the most prevalent unmet needs of haematological cancer survivors, particularly with regard to cancer-related tiredness, and emotional and informational concerns. Health care providers should also be aware that subgroups of haematological cancer survivors with a higher risk of experiencing multiple and elevated levels of supportive care needs may require additional and tailored supportive care.
- Subject
- haematological cancer survivors; unmet supportive care needs
- Identifier
- http://hdl.handle.net/1959.13/1308134
- Identifier
- uon:21618
- Rights
- Copyright 2014 Alix Edna Hall
- Language
- eng
- Full Text
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| Thumbnail | File | Description | Size | Format | |||
|---|---|---|---|---|---|---|---|
| View Details Download | ATTACHMENT01 | Abstract | 558 KB | Adobe Acrobat PDF | View Details Download | ||
| View Details Download | ATTACHMENT02 | Thesis | 2 MB | Adobe Acrobat PDF | View Details Download | ||
| View Details Download | ATTACHMENT03 | Appendices | 13 MB | Adobe Acrobat PDF | View Details Download |