- Title
- Exploring the experience of psychological morbidity and service access in community dwelling stroke survivors: a follow-up study
- Creator
- White, Jennifer; Dickson, Alexandra; Magin, Parker; Tapley, Amanda; Attia, John; Sturm, John; Carter, Gregory
- Relation
- National Stroke Foundation
- Relation
- Disability and Rehabilitation Vol. 36, Issue 19, p. 1600-1607
- Publisher Link
- http://dx.doi.org/10.3109/09638288.2013.859748
- Publisher
- Informa Healthcare
- Resource Type
- journal article
- Date
- 2014
- Description
- Purpose: Post-stroke depression occurs in one-third of stroke survivors with a similar risk of development across short, intermediate and long-term recovery stages. Knowledge of factors influencing psychological morbidity beyond the first year post-stroke can inform longterm interventions and improve community service access for stroke survivors. This paper aimed to identify the physical and psycho-social functioning status of stroke survivors beyond 12 months post-stroke. Qualitative processes explored the longer term experiences of psychological morbidity and service access needs. Method: A cross-sectional follow-up of participants from a prospective cohort study. In that study, patients and were followed for 12 months post-stroke. In this study, participants from that cohort study were interviewed up to five years post-stroke. Data generation and analysis were concurrent and were analysed thematically, employing a process of constant comparison. Results: Our sample included 14 participants, aged 58–89 years at an average of three years post-stroke (range 18 months to five years). Our qualitative key themes emerged as follows: physical impacts on post-stroke psychological morbidity, the experience of psychological distress, factors attenuating distress and service delivery implications. Conclusions: The experience of psychological morbidity persists beyond 12 months post-stroke, having a profound impact on community access, and social participation. Clinical implications are a need for long-term psychological monitoring post-stroke and for ongoing rehabilitation that addresses disability, community participation and social support.
- Subject
- outcomes; post-stroke depression; qualitative; rehabilitation; stroke
- Identifier
- http://hdl.handle.net/1959.13/1061192
- Identifier
- uon:16903
- Identifier
- ISSN:0963-8288
- Language
- eng
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